
Dear Sweet Tater Tot:
April 1, 2009
Where does the time go sweet baby boy? It is hard to believe that you would be 5 this week. I can't even fathom you starting school with your other buddies this year. For some reason, your 5th birthday is extra hard this year.
I wanted to write about the day you were born....or at least what I can remember of it (smile...Mom was on good drugs that day).
We found out at 20 weeks that we were having you (A BOY!!! Just what we wanted). With that "fun" sonogram came a big blow. The Doctor said they couldn't find your fourth chamber in your heart and we would need to go to a high risk doctor to get a better sonogram. So, we waited a couple of really LONG weeks and met with the High Rish Dr. Only to find out he couldn't tell what was wrong with your heart either. He refered us to a Heart specialist at Cooks and we waited another couple of really long weeks to see her. She brought your heart sonogram up on the screen and immediatly said....ok, He has what is known as Hypoplastic Left Heart Syndrome (HLHS). It basically means all your chambers were there, but the whole left side of the heart could not function and was very very small.
We were relieved to have a diagnosis until she gave us our options: terminate the pregnancy (not an option!!!!), heart transplant (I'm sorry but WHAT???) or a series of surgeries performed over the first few years that could possibly lead to a heart transplant later....or not. Oh, I forgot to mention the most gut wrenching one....she said we could do what is called (sympathy care) and just bring you home to die after you were born.
So......what do you do with that? The choice was obvious for us....we wanted to give you your best chance and do what was right for you in our eyes and we chose the surgeries.
On the day you were born:
We woke up extra early that morning and headed to the hospital. The high risk doctor thought it would be best to do a c-section to give you your best chance. I wore this sweet shirt your Ninny made me with a picture of your sonogram really big across my belly....it was so sweet.
The c-section went really well and I will avoid details of that fun stuff. When you were born, the nurse brought you around and held you up to me just for a second before they put you in your little "box" and wisked you off to Cook Children's. They had a team of people waiting on you to check you out. I didn't even get to kiss you! Thankfully I had thought ahead and brought an old poloroid camera to take a couple of snaps of you to have in my room with me since you couldn't be there.
Over the next couple of hours, I was trying to get feeling back in my legs so I could come over to your hospital to see you. Unfortunaly, this process was very slow and several hours later I insisted they roll me over even though I couldn't feel my legs. So off we went through the tunnel that connects the hospital.....family in tow and me on a gurney laid flat.
They parked me right beside you. Oh, can I find the words? Glorious, amazing, heart wrenching, breath-taking.....I was overwhelmed. You were so beautiful.....and big! You didn't look like a little sick baby, but a healthy strapping boy. You were asleep.....an angel. I laid there for a long time while people came in and out to meet you. I couldn't take my eyes off you....oh to touch you and hold you.....only a dream to me at that time.
I cannot even tell you what the rest of your birthday held. I was so overwhelmed with love for you my memory has erased what happened after I met you.
Happy Birthday my love.....I miss you every second....